I’m a 31 year old woman.
I was 26 years old when I was
finally diagnosed with a chronic illness called Crohn’s Disease.
For those not familiar
with the condition it’s an ‘invisible’ illness which causes inflammation of the
intestinal tract and disease itself can be located anywhere from the mouth to
the anus. On the scale of sexy diseases it’s probably pretty far down the list.
Who made a scale of sexy diseases anyway? What’s wrong with you? PERVERT.
Due to the invisibility of the condition it’s often
difficult to express how you feel without fear of judgement or disbelief. If
you look fine on the outside it’s natural people would be surprised to find you
feel like your intestines are about to combust on the inside. But it’s not all
invisible. Many of the treatments, medications and general upkeep in living
with the illness can leave side effects and symptoms that are far from
invisible.
Before I knew I had Crohn’s, I had arthritis. In my knees, at
25. Nothing majorly unusual about this I hear you cry, but I was of the
assumption at that time that OLD people had arthritis. Pensioners, who are
generally slow and live at a snail’s pace, anyway, have the defunct bones and
muscles because that’s the way of the world when you start to age. I was in my
mid-twenties and suddenly found myself in excruciating pain when I so much as
bent my legs. I was despondent and miserable, and depressingly in the position
of considering treatments and taking drugs and having ABSOLUTELY MASSIVE
needles stuck into my knees. I couldn’t enjoy dancing or swimming like I once
had, and couldn’t even cross my legs without discomfort. It was an odd, new and
unexpected situation.
Mere months later I was in agonising pain higher up – in my
stomach. I was suffering from another issue, the aforementioned Crohn’s. If I’d
found the arthritis a frustrating challenge up to now, I had no clue what was
ahead of me.
I was a young woman, being wheeled in and out of hospital and
terrified. I managed, around my hospital visits, sick leave and treatments, to
have as normal a life as possible in an abnormal situation. But the little things
you will inevitably encounter when living with chronic illness are often those
which leave a mark that’s far from invisible. Blood tests left my arms bruised
and sore, cannulas left tiny life-long scars over my hands and arms and intense
courses of drugs left me either bloated like an inflated hamster or painfully pale
and thin.
There was, there is, no
happy medium.
When I had my surgery, I fretted my stomach would look
repulsive when I came out the other side. I worried I’d have a stoma, and that I
wouldn’t be able to adapt. That I’d have to dress in unflattering smocks for
the rest of my life, and that the man I love wouldn’t dare consider engaging in
intercourse with me for at least the next few millennia. Looking back now, I realise
that the worry around my operation really was just the cherry on an already
highly calorific anxiety cake. I became aware that my so called invisible
illness was having a much bigger impact on how I viewed my body than I had
realised.
Young women as a rule have difficulty with the way they view
themselves, there’s always at least one part of the body we hate/wish we could
change/find abhorrent. I don’t think that necessarily fades with time either,
maybe we just learn to live with those bits a little more, or find solace in
the fact that someone we care about finds something beautiful in them. (Not that
we all require reassurance from another person to appreciate ourselves of
course). I’ve got a big nose and a big chin for example; I hated them with a
passion as I grew up, then I realised my Dad has the same features and I
absolutely adore my Dad so it’s nice I have something of his. When people say I
look like my Dad I take it as a compliment, as a teenage girl that wasn’t so
easy, but now I accept he was a handsome devil in his heyday and is a wonderful
person, so what could be wrong in his daughter carrying some of that on?
Trying to see the positive in what you perceive to be
imperfections isn’t as easy as it should be, and can be made infinitely more
difficult when your body, internally and externally, can change so much with a
chronic illness. Like many illnesses of this type they are incurable, so
viewing changes in your body positively is an ongoing and relentless struggle.
I try to focus now on what I can change; if I look pale I make
up my face a little, if my skin and scalp are dry and sore I lather myself in sweet-smelling
creams until I feel luxuriant.
If all else fails I stand in front of the man I love
in the nude and see if he runs out the door screaming and crying in horror, or
grins from ear to ear.
Once I finally manage to beg him to come home and dry his tears, I feel
I can achieve anything.
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